It was very confronting of course but I needed to be strong for my daughter and son in law. The kidneys are still not functioning and will have a permanent dialysis line put in in a procedure this week. This will mean that the little one can then go to a ward. The doctors are confident that kidney function will return to normal in a 6-8 week time frame. Physiotherapy, Occupational Therapy, Speech Therapy and Music Therapy take up a big part of Miss C’s day and best of all is that she is eating and drinking. She wasn’t impressed when a therapist limited her food intake to 10 teaspoons at a time and demanded that her mother keep spooning out the yoghurt...to no ill effect thank goodness ๐.
Because the life support machine ECMO has been known to cause brain damage, Carrie had an MRI on Friday and results were normal. Great jubilations!
I mentioned the kindness of others...spiritually, so many people, many are strangers, have been praying for Carrie and her family, her parents’ workplaces have been very accomodating work wise, the daycare centre delivered 3 big bags of food, toys and books and are not charging fees. ( in Australia parents are mostly charged whether the children attend or not ๐คจ)
To help with the day to day costs plus extras involved such as travelling to an from their home just to the north of Brisbane, mortgage etc, one of DD1’s friends started a Go Fund Me page.
A quilt and a book were given to Carrie as a gift from Soroptimist International...beautiful.
An Australian company which sells a range of sleep toys heard of Carrie’s plight and wrote a lovely message to DD1.
Needless to say DD1 was very appreciative of the offer of an amputee sleep toy...
Carrie’s beloved ‘Raffy’ the Fox has been with her during this ordeal...there he is on her left side.
And now she also has Raffy the Fawn whose left arm is missing...
And there is a Canberra based group who make superhero capes for children in hospital Capes 4 Kids. I contacted them about their pattern thinking I would make one for Carrie and in the future make some for the charity...
So of course accepted the offer of a cape for Carrie...
As I said, the kindness of others is very humbling and uplifting at the same time.
This has become my favourite photo. Carrie has been lifted from the bed, along with all the tubes and lines and placed on her mum in the armchair. Those cuddles are just so special. ๐๐
12 comments:
Thank you for the update, Maria. I've been wondering how things were going. Best wishes to you and your whole family.
Oh dear me, Maria. I didn't realise the little dot had lost her leg. How sad for her and the family but children are more resilient than adults and these days there is so much around that wasn't even heard of years ago which will help her. Big hugs and I will be praying for you all.
Hi Maria i am so sorry for what little sweet Carrie is going through ,what a beautiful little girl,I pray for her to get better soon ,sending you and your family lots of love,what a grave little grand daughter xx
Thank you so much for the update on Carrie. What a strong little girl and what a strong and loving family you all are.
My thoughts and prayers are with you all.
God bless.
as you say - the support and generosity of others are making this a little more bearable. What a wonderful idea to have those special one armed pals.... and the capes!
Maria, how nice that your little one is recovering so well. Hugs to all of you.
I've been wondering how she is. I'm very glad to hear she is recovering well and receiving so much support. It's very moving to see the donations from strangers and the medical team have been amazing. I'm sure you have also been a pillar of strength to your little granddaughter and her parents. I hope she continues to recover quickly and can soon have more yoghurt. Hugs to you all :) x
Sending big huge hugs to all the family xo
Dear Maria, it was lovely to see your update on little Carrie.
What a huge relief for her parents and all of you around her to know that she is starting to recover.
Such kindness is wonderful to read about from all those organisations and volunteers.
Seeing your photos is something special.
Hugs xx
Such a difficult time for all your family Maria and what a brave little girl Carrie is. And so much kindness from others, really heartwarming to read Maria. Sending lots of love and prayers to you all. xx
Lots of love and prayers to your family and special one to little C Jaana
Sending love and prayers for your precious little one and her family. What an ordeal your family has been through and I’m so glad you have had good people to help you through.
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