Another lady in this group is a radiographer and our friend's problems intrigued her. This lady suggested that our friend ask her GP to refer her for neurological tests as the ENT specialists had had no answers. Our friend had to insist she be sent for these tests as her GP thought it was a waste of time...😒
Just under a month ago, our friend got the results of her tests. It was devastating news...she has Motor Neurone Disease. ( also known as Lou Gehrig's Disease and ALS, depending on what country you live in)
'Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells (neurones) controlling the muscles that enable us to move, speak, breathe and swallow undergo degeneration and die.'
The prognosis is not very good I'm afraid. Our friend got this diagnosis a few days before she was due to fly overseas to visit her only child. The specialist told her to have her holiday, so that is where she is at present. When she comes home, she plans to move to a complex with various levels of accomodation. She will first go to an independent living townhouse and then as her need for care arises, she will still be able to be in the same complex. Our group are discussing how we can help...and reading everything we can about this terrible disease.
During this last month, I've found that attending the gatherings of the other groups I belong to, has been great in lifting my spirits...
Knitting group at Albany Creek..